REPAIRS

You can take part if you are living in the UK and have felt pain during routine NHS breast screening.

Routine NHS breast screening is offered to women between 50 and 71 years of age. Women are invited to come to breast screening every three years.

You will be asked to do a one-off interview with a female researcher. The interview will last up to one hour.

The interview can be done by telephone, by Teams or can be done in person at our university campus in Whitechapel or at a local community centre.

Interviews can be conducted in English, Bengali or Somali.

During the interview the researcher will ask you to talk about what it was like when you went to breast screening and you felt pain. The interview will be recorded using a voice recorder and typed up by a professional typing company (and translated if needed).

You will get £25 in Vex shopping vouchers to say thank you for taking part. This voucher can be used online or in store at a large range of different supermarkets. If you decide to take part and do an interview in person, we will also repay you for any travel expenses.

You can read more about the study REPAIRS Participant Information Sheet.docx [DOC 190KB]

Halkan ka akhri wax badan oo ku saabsan daraasadda REPAIRS Participant Information Sheet Somali.docx [DOC 189KB]

এখানে গবেষণা সম্পর্কে আরও পড়ুন। REPAIRS Participant Information Sheet Bengali.docx [DOC 175KB]

To see if you are eligible to take part, please complete this short questionnaire.

https://app.onlinesurveys.jisc.ac.uk/s/qmul/take-part-in-repairs-project

If you are eligible to take part, you will be asked to provide your contact details and answer some demographic questions. A researcher will then contact you about taking part in an interview.

If you would prefer, you can email the researcher directly to take part: g.hutton@qmul.ac.uk

আপনি অংশগ্রহণের যোগ্য কিনা তা যাচাই করতে, অনুগ্রহ করে এই সংক্ষিপ্ত প্রশ্নাবলীটি পূরণ করুন।

https://app.onlinesurveys.jisc.ac.uk/s/qmul/repairs-reducing-pain-in-breast-screening-study-bengali

আপনি যদি অংশগ্রহণের জন্য যোগ্য হন, তাহলে আপনাকে আপনার যোগাযোগের তথ্য দিতে এবং নিজের সম্পর্কে কিছু সাধারণ প্রশ্নের উত্তর দিতে বলা হবে। এরপর একজন গবেষক সাক্ষাৎকারে অংশগ্রহণের বিষয়ে আপনার সঙ্গে যোগাযোগ করবেন।

আপনি চাইলে, অংশগ্রহণের বিষয়ে সরাসরি গবেষককে ইমেইল করতে পারেন। g.hutton@qmul.ac.uk

Si loo ogaado haddii aad u qalanto inaad ka qayb qaadato, fadlan buuxi su'aalo-waydiintan gaaban

https://app.onlinesurveys.jisc.ac.uk/s/qmul/repairs-reducing-pain-in-breast-screening-study-somali

Haddii aad u qalanto inaad ka qayb qaadato, waxaa lagu weydiin doonaa inaad bixiso faahfaahinta lagula soo xiriiri karo iyo inaad kajawaabto su'aalo fudud oo adiga kugu saabsan. Kadib, cilmi-baare ayaa kula soo xiriiri doona si uu kaagala hadlo ka qaybgalka wareysiga

Haddii aad doorbidayso, waxaad si toos ah iimayl ugu diri kartaa cilmi-baaraha si aad uga hadashaan ka qaybgalka g.hutton@qmul.ac.uk

REPAIRS Research Team

The REPAIRS project is based at the Centre for Cancer Screening, Prevention and Early Diagnosis at the Wolfson Institute for Population Health at Queen Mary University of London in collaboration with community members in Northeast London.

Dr Judith Offman:  Principal Investigator for the REPAIRS project and Senior Lecturer in Cancer Prevention and Early Detection, Centre for Cancer Screening, Prevention and Early Diagnosis.

Dr Gemma Hutton:  Post doctoral researcher for the REPAIRS project, Centre for Cancer Screening, Prevention and Early Diagnosis.

Professor Jo Waller: Professor of Cancer Behavioural Science, Centre for Cancer Screening, Prevention and Early Diagnosis.

Professor Suzanne Scott:  Professor of Health Psychology and Early Diagnosis, Centre for Cancer Screening, Prevention and Early Diagnosis.

Dr Patsy Whelehan:  Consultant Radiographer, Great Western Hospital, Swindon.

Dr Christina Derksen: Post doctoral researcher, Centre for Cancer Screening, Prevention and Early Diagnosis.

Dr Adam Brentnall: Senior Statistician and reader in Biostatistics, Centre for Cancer Screening, Prevention and Early Diagnosis.

Sulyika Abdullahi: community member, Northeast London

Shazna Begum: community member, Northeast London

Loubna Bijdiguen: community member, Northeast London

Shurkri Hassan: community member, Northeast London

Nasim Patel: community member, Northeast London

What personal information will you ask about me?

Taking part in the study means doing an interview. You will be asked some questions about your experience of breast screening and pain.

Taking part in the study also means we will ask some questions about you and your background. This is so we can make sure we are including a mix of different people in our study. This helps to make sure that our study includes experiences from different groups.

There are some questions we will ask that we need you to answer to be able to take part in the interview. These include:

• Your name
• Your contact details (telephone number and/or email address so we can contact you and arrange the interview)
• Your age and ethnicity (this is to make sure we are speaking to a mix of different people)
• Your preferred language (so we know whether we can offer an interview in your native language)

There are other questions that we will ask but you do not have to answer if you do not want to and you can still take part in the interview without answering them. These questions help us to make sure that we talk to lots of different people with different backgrounds and experiences.

• Your gender
• Whether or not you have a disability (we will not ask for details of any disability)
• What your religion is
• Whether or not you are working, and how much you work (we will not ask for any details about your work, for example, what you do for work or where you work)
• What your highest level of education is (you do not need to share details of qualifications)
• The borough where you live (we do not need your address unless you want us to send information by post)

How will my information be stored and who will have access to it?

Any information we collect about you including recordings of your interview will be stored on a secure server hosted at Queen Mary University of London. We store information in de-identified format which means your name will be replaced by a unique code to label your interview data and your personal information. These unique codes linked to your real identify will be stored separately from the research data in a password protected database on a secure drive and will only be accessible to the immediate research team.

We also remove any information that may identify you. For example, if you talk to us about a specific breast screening service, we will remove the name of the breast screening service.

Any information about you will be kept strictly confidential and stored securely.

All investigators and research team comply with the requirements of the General Data Protection Regulation (GDPR 2018) and the Data Protection Act (DPA 2018) with regards to the storage, processing, handling and destroying the information you give us.

You can find further details of QMUL’s data protection privacy notice for research participants in http://www.arcs.qmul.ac.uk/media/arcs/policyzone/Privacy-Notice-for-Research-Participants.pdf, which includes access to QMUL’s record retention schedule.

How will my information be used and shared?

Any information about you will be kept strictly confidential and stored securely. Our procedures for storing, processing, handling, and destroying the information you give us adhere to the Data Protection Act and the General Data Protection Regulation. We hope to report anonymous findings in academic journals and present them at scientific meetings and conferences. This may include the use of anonymised quotes from the interviews. You will not be identified in any reports or publications from the study. We may share information collected from you in this study to support other research in the future and it may be shared in anonymised form with other researchers or regulatory authorities. 

If you are interested, we can send you a summary of the findings from this study by email or post.

Under what legal basis are you collecting this information?

Queen Mary University of London processes personal data for research purposes in accordance with the lawful basis of ‘public task’.

Please read Queen Mary’s privacy notice for research participants containing important information about your personal data and your rights in this respect.

If you have any questions relating to data protection, please contact Queen Mary’s Data Protection Officer, Queens’ Building, Mile End Road, London, E1 4NS or data-protection@qmul.ac.uk or call 020 7882 7596.

The REPAIRS project is funded by Breast Cancer Now.

 [Grant number: 2025.04.IPHEW1821) 

If you would like more information about breast cancer and breast cancer screening, please visit Breast Cancer Now website at www.breastcancernow.org or call a Breast Cancer Now nurse on 0808 800 6000

To find out how to book an appointment for NHS breast screening, please visit: https://www.nhs.uk/tests-and-treatments/breast-screening-mammogram/how-to-book-or-change-an-appointment/

If you have any questions or want to have a chat with the researcher about taking part, please get in touch with Gemma by phone on 020 7882 3495 or by email g.hutton@qmul.ac.uk