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Adrenal

Forms

If you have a patient that has been diagnosed with or you suspect has Primary Adrenal Insufficiency please contact us and we will send you a link to add patient details to our secure database. 

Once samples have been collected (DNA or blood) we will endeavour to obtain a genetic diagnosis for your patient. 

Important: We are a purely research based group and therefore all genetic diagnoses may have to be validated by a NHS or nationally accredited facility.

The forms below are data collection instruments from our database survey, feel free to look over them to gauge what information we are seeking. we have also included our consent forms for child and adult patients, family members and healthy volunteers.

Please click on the below link to download the Initial Data Collection form:

REDCAP Initial Data Collection [PDF 92KB]

Please click on the link below to download the Follow Up Survey:

Follow Up Assessment [PDF 87KB]

Please click on the link below to download the adult patient consent form:

Adult patient consent [PDF 89KB]

Please click on the link below to download the adult family member consent form:

Adult Family Member [PDF 88KB]

Please click on the link below to download the adult healthy volunteer consent form:

Adult Healthy Volunteer [PDF 74KB]

Please click on the link below to download the child patient consent form:

Child Patient [PDF 90KB]

Please click on the link below to download the child family member consent form:

Child Family Member [PDF 93KB]

Please click on the link below to download the child healthy volunteer consent form:

Child Healthy Volunteer [PDF 63KB]

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